Tuesday, January 24, 2017

Living with challenges...

I sit here in front of my computer screen and STARE, not really sure what to say. Tomorrow, I go for the results of the rest of my scans. The different scenarios of what could be the outcome of Monday's scans and tomorrow's blood tests occupy my mind. I try to remain positive and hopeful, but also know that things don't always work out that way. What I am hoping for is a continuation of last week's brain scan where things appeared to be stable. 

The most recent way I try to handle things is to take what I'm given, ask the questions I need to, fight for what I think will be the best treatment and carry on as best I can. This is typically how I have tried to handle things from the beginning. Now I think I'm just becoming confident enough to challenge the thoughts of the doctor while trying to incorporate all those working with me to give me my best life. 

This job is a daily challenge, from waking up in the morning to going to bed in the evening, and everything in between. I'm exhausted most of the time and feel like I could sleep 24/7. I'm not driving, but I have to coordinate the daily rides my children need to get to their activities. I'm blessed to have so many willing to help us out. For those Metastatic Fighters who are still working in paid positions, you are amazing. I can only imagine how difficult it is most days and I think it should be a requirement for you to have a comfortable resting place when you need it.  Keep up the fight,  fellow warriors! We're all in this together, in one way or another.


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